Opportunity Information: Apply for CDC RFA DD19 1901
The grant opportunity titled "Enhancing Public Health Surveillance of Autism Spectrum Disorder through the Autism and Developmental Disabilities Monitoring (ADDM) Network" (Funding Opportunity Number CDC RFA DD19 1901) is a CDC cooperative agreement designed to strengthen state and local capacity to track autism spectrum disorder (ASD) using a population-based, multiple-source surveillance approach. Run through the Department of Health and Human Services, Centers for Disease Control and Prevention (CDC), specifically within NCBDDD, the program supports sites that participate in the ADDM Network, CDC's long-running system for estimating ASD prevalence and describing the characteristics of children with ASD using consistent methods across locations. The overall goal is to improve the quality, consistency, and usefulness of ASD surveillance data so that public health agencies, education systems, clinicians, and community partners can better understand needs, plan services, and improve identification and supports over time.
Funding is organized into two components. Component A is mandatory for all applicants and represents the core ADDM surveillance work. Under Component A, funded sites conduct surveillance of ASD among two key age groups: 4-year-old children and 8-year-old children. This dual-age approach is meant to capture both earlier identification patterns (age 4) and the more established prevalence estimates that have historically been tracked at age 8, helping CDC and sites understand not only how common ASD is, but also whether identification is happening earlier and how that varies by community and by subgroup.
Component A comes with a set of specific expectations tied to maintaining standardized, comparable surveillance across the network. Sites must follow the established ADDM Network methodology, which is critical because it ensures that findings from different states or regions can be compared and combined. A major operational requirement is that applicants renew or establish agreements that allow access to both health and education data sources, including electronic and paper records. This matters because ASD-related information is often distributed across pediatric and specialty healthcare records, early intervention systems, school evaluations, and special education documentation, and relying on a single source would miss cases and distort estimates. The NOFO also emphasizes workforce capacity by requiring staff training and ongoing education, reflecting the technical nature of record abstraction, case determination, and quality control in a surveillance system of this kind.
On the data side, Component A requires sites to submit clean, de-identified datasets to CDC, and those datasets must include linkages to vital records and/or census data where applicable. These linkages allow deeper analysis of demographic patterns and community-level factors while protecting individual privacy. In addition to producing surveillance data, the opportunity pushes sites to contribute to the scientific and practice literature by submitting at least two manuscripts, which helps translate surveillance findings into evidence that can inform policy and program decisions. The NOFO also places a strong emphasis on real-world use of the data: sites are expected to actively engage partners and stakeholders in efforts that increase understanding and application of ADDM findings, such as using data to guide local planning, resource allocation, or targeted outreach. Finally, sites must create and implement a strategic plan for performance monitoring and evaluation, signaling that CDC expects continuous improvement, documentation of progress, and clear accountability for deliverables.
Component B is optional and adds a longitudinal follow-up element focused on outcomes during adolescence. Specifically, Component B funds follow-up at age 16 for children who were previously abstracted for ASD at age 8 in the 2010 and 2012 surveillance years. This part of the project is meant to go beyond prevalence estimates and describe how youth with ASD are doing later in development, including their characteristics, functioning, and the educational services they receive. A notable emphasis within Component B is educational service delivery related to transition planning, which is a key issue as adolescents approach adulthood and move from pediatric and school-based systems toward adult services, employment supports, and postsecondary opportunities. By collecting these follow-up data, CDC and participating sites can better identify gaps in services, understand variation in supports, and inform public health strategies intended to improve both identification and service delivery across childhood and into adolescence.
Administratively, this is a discretionary funding opportunity using a cooperative agreement mechanism, which typically means CDC expects substantial involvement through technical assistance, coordination, and shared responsibility for implementing the ADDM methodology. The opportunity is listed under CFDA 93.998, with eligibility described as unrestricted (open broadly, subject to any additional clarifications in the full notice). The NOFO was created August 1, 2018, with an original application closing date of October 1, 2018 (applications due by 11:59 p.m. Eastern Time). The award ceiling is $775,000, and CDC anticipated making about 10 awards. Overall, the structure signals a program focused on expanding and sustaining high-quality ASD surveillance infrastructure while also increasing the practical value of the data for communities and decision-makers.Apply for CDC RFA DD19 1901
- The Department of Health and Human Services, Centers for Disease Control - NCBDDD in the health sector is offering a public funding opportunity titled "Enhancing Public Health Surveillance of Autism Spectrum Disorder through the Autism and Developmental Disabilities Monitoring (ADDM) Network" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.998.
- This funding opportunity was created on Aug 01, 2018.
- Applicants must submit their applications by Oct 01, 2018 Electronically submitted applications must be submitted no later than 1159 p.m., ET, on the listed application due date.. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $775,000.00 in funding.
- The number of recipients for this funding is limited to 10 candidate(s).
- Eligible applicants include: Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled Additional Information on Eligibility.
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